Cure DM CIC exists to help those with Myotonic Dystrophy, their families and carers. We raise awareness in healthcare, support services, pharmaceutical companies and researchers, to improve care, and focus attention on this rare and devastating condition. We are not ‘just another cause’ – we are living with Myotonic Dystrophy ourselves, every minute of every day – through our congenitally affected children. Between the team we all have a whole range of experiences, and are passionate about sharing them with you, and making the journey a little easier for others. We have a physical shop where you can come for a chat, and we can hold a whole range of information – not only on DM but on all neuromuscular conditions. We are supported by Muscular Dystrophy UK so can direct you to a whole range of support services – including Advocacy, neuromuscular care advisors and much more. We stock a range of goodies you can buy – including Miles Charity branded stock we have had made JUST for you. We will be changing the theme of the shop regularly to keep it interesting – so do keep popping by. You can also sign up for some of our fundraising events – from London Marathon to a simple ‘bonus ball’ competition. We rely solely on support from the public and fundraising, so try to have a whole range of activities you can get involved in. Contact us if you would like to fundraise for us 🙂 As a community Interest Company – ALL PROFITS are distributed. To provide family support and get togethers for those affected – sometimes these meetings are the first time a family has ever met another family living with the same issues, this support is so important. And The Congenital Myotonic Dystrophy Fight Fund, to fund much needed research which will hopefully one day lead to a treatment….or CURE! Our support base is situated in Brigg, North Lincolnshire, but we have contacts all over the country. No-one is beyond our reach (and we love to travel!), so please do contact us. Thank you for your support.
Unit 15, Chapel Court,